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ICRS Patient Registry

Welcome to the ICRS Patient Registry

The ICRS Patient Registry is the first international database for the clinical outcomes of cartilage repair and joint preservation treatments. We are passionate about inclusivity for our clinicians and patients, and currently offer the Registry in twelve languages. With expansion and wider use, additional languages may be added to the Registry. The Registry was established in 2016 at the ICRS Meeting in Sorrento. It is guided by a Steering Committee comprised of orthopaedic surgeons, veterinary surgeons, clinician scientists, and research scientists.

The Registry can monitor the progress of patients who have been diagnosed with pathologies of the articular cartilage, subchondral bone, and other soft tissues within the knee. It can thus allow a study of the natural history of such pathologies, whether they are treated surgically or conservatively. The response of patients to injury and to joint preservation or cartilage repair treatments can be variable. It is thus vital that patient progress is monitored, particularly as treatments at the forefront of medical advances may be expensive.

Clinicians may monitor their own patients’ progress through the Registry, as users have direct access to their own data. Clinicians can also export their data for analysis at any time. To monitor the progress of all patient data within the Registry, the ICRS pool together large numbers of anonymized data and analyse these. These analyses give us an accurate picture of which techniques are working best for which patients. Ultimately, the data held by this Registry will help future patients with similar injuries, and rapidly identify treatments that are showing great benefit, or those that may not be performing as well as hoped. The inclusion of the EQ-5D score in the Registry will also enable us to perform cost effectiveness and health economic analyses of the data in future.
Irrespective of the health care location in which you practice, recording this data is increasingly required for continued service provision. We therefore encourage you to start taking advantage of this free resource today.

General Data Protection Regulation (GDPR)

ICRS / Amplitude is processing your personal data under the lawful basis of legitimate interests under instruction from our registry, hospital and other clinical customers.

Registry Mission

The ICRS Patient Registry mission is to create a global source of unbiased outcomes data for treatments that preserve the joint and repair articular cartilage lesions. This is paramount for the improvement of existing and discovery of new cartilage repair strategies, which has the potential to be beneficial for millions of patients worldwide.

Important Links:

Registry Annual Reports

Registry Access for Patients

Access for Clinicians & Hospitals

Tutorials

Acknowledgement

Watch the ICRS Patient Registry Interview with Mike McNicholas, Elizaveta Kon and Gwen Tawy!

Registry Contact / Information

Gwenllian Tawy PhD
Research Associate
Division of Cell Matrix Biology and Regenerative Medicine
Manchester University
United Kingdom
gwen.tawy@cartilage.org
registry@cartilage.org

After completing an MRes and PhD in Biomedical Engineering at the University of Strathlcyde, Gwen is now a Research Associate at the University of Manchester. Her main research interest is the clinical assessment of lower limb biomechanics, particularly of the knee, in arthritis and following trauma. She is also interested in treatments and methods of preventing disease progression in osteochondral injury and osteoarthritis. Other research interests include outcomes after knee replacement surgery as well as the health economics and assessment of novel devices in orthopaedic surgery. The ICRS Registry is continuing to grow and evolve. Gwen is keen to work with surgeons and industry partners to help build the registry into a robust data collection and outcome tool.