Registry Access for Patients
If you suffer from joint pain, you’re not alone. Each year, more than 50 million people visit their doctors because of joint pain — half of them with a damage of the articular cartilage. Many new and exciting treatments are emerging around the world with the hope of alleviating you of the painful condition that is spoiling your quality of life. At the ICRS we have been central to the education of scientists, surgeons and physiotherapists in disseminating the information to allow you to have such new treatment options available to you. This will, in time lead to the identification the best patient specific treatment option per patient.
The primary objective of this patient registry is unbiased measurement of cartilage repair strategies in order to improve cartilage repair in a long-term durable manner. The time you give in completing the straightforward questionnaires will allow surgeons to help those patients in the future suffering with the same condition you have. This will give better knowledge of the likely success rate and potential for complications, so they can make a more informed choice. You, your surgeon, and rehabilitation team will be able to track your progress using this interface.
The registry is currently set-up for Knee Problems but other joints will be added in due time. The actual system language is English but we have translated the system into Japanese, Polish, Italian, Portuguese, Spanish, Dutch and Greek.
General Data Protection Regulation (GDPR):
ICRS /Amplitude is processing your personal data under the lawful basis of legitimate interests under instruction from our registry, hospital and other clinical customers.
Your data will be treated with absolute confidentiality, but if as we look into the various treatments used, we identify a problem with a treatment we will be able to contact surgeons to keep a close eye on how their patients are getting on.
- You will be contributing to the evolution of medicine & surgery
- You will be able to track your own progress
- All data are treated 100% confidential
- A patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves a predetermined scientific, clinical, or policy purpose(s).