If you suffer from joint pain, you are not alone. Each year, more than 50 million people visit their doctors because of joint pain — half of them with a damage of the articular cartilage. Many new and exciting treatments are emerging around the world with the hope of alleviating you of the painful condition that is affecting your quality of life. At the ICRS we have been central to the education of scientists, surgeons, physiotherapists and other healthcare professionals in sharing important information on new treatment options available to you. In time, this will help us work out which treatment options work best for each of our patients.
The primary objective of this patient registry is to measure the long-term success of treatments that repair damaged cartilage and preserve the knee joint, in an unbiased manner. The time you give in completing the straightforward questionnaires will allow healthcare professionals to help those patients in the future suffering with the same condition you have. This will give better knowledge of the likely success rate and potential for complications, so they can make a more informed choice. You, your healthcare professionals will be able to track your progress using this interface.
The registry is currently available for knee problems, but other joints will be added in due time. The platform is currently available in 12 languages.
General Data Protection Regulation (GDPR):
ICRS /Amplitude is processing your personal data under the lawful basis of legitimate interests under instruction from our registry, hospital and other clinical customers.
Confidentiality:
Your data will be treated with absolute confidentiality. However, if we identify a problem with a treatment as we analyse the data, we will contact the healthcare professionals using the Registry to ensure they keep a close eye on how their patients are getting on.
Key Aspects:
• You will be contributing to the evolution of medicine & surgery
• You will be able to track your own progress
• All data are treated 100% confidentially
Definition:
• A patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves a predetermined scientific, clinical, or policy purpose(s).